Emma had a great day today. She has eaten more. She's happy. She is moving around on her own. I don't have to help her role or sit up. She had pain meds this morning, and went all day with only ice and 2 naps. Things are looking good. :) Big smiles here!

Home Sweet Home

WE ARE HOME!

She still isn't eating much (she's only eaten one of those kid apple sauces in almost a week!), but we are hoping being home will perk her interest. Her pain is mostly in her neck. Her hip hurts if she moves. Thats where they harvested the bone for the fusion. Sometimes her head hurts all over. Her tummy hurts (probably cause it's hungry!), she's scared to take her medicine afraid it might make her sick. The doctor looked at her MRI and was happy with what he saw. No fluid leaking, and he thinks her syrinx is looking smaller. Emma wants to get out of her. She wants to go to Vegas, Lake Powell, Arizona and Canada this summer! Thanks for all your love and prayers.

Family time!

These are before my Wonderful Mom took the kids to Vegas Sunday.

Levi is to young to be on the ICU floor so we had to sneak him in to see her. It was so worth it. Emma loved having him there.

All the kids playing Wii

Ok they have moved us out of the ICU. Emma is getting an MRI. Then she will come back to a new room. She walked down the hall with very little support. Her spirit is a little beat down and she is refusing to eat. If she will start eating we might be out of here tomorrow. Which would be great. Now we have a shared room. Not fun. Over the next few weeks we are praying that she doesn't develop a spinal fluid leak or we will be back her.

Nate and I are doing good. My mom has been a life saver and taken Meg and Levi back to Vegas. So if anyone can take them off her hands for a while it would be wonderful! Thanks for your love and support, and continued prayers.

Recovery

She mostly sleeps, Morphine will do that. She's gotten pretty ornery. She just ignores us if we ask a question she doesn't want to answer! The physical Therapist tried to get her to sit up and she was mad. Then Rex came in and she was so excited to see Rex and show him the Wii she sat up and played, She wanted to keep playing but she got to tired! She was so excited to see Meg too. Made her day. I'm hoping she has more energy for tomorrow.

Therapy

This was before surgery yesterday, i swear Therapy helped (both gifts, Wii & pet therapy). When Emma woke up she started to whine and whimper, that the pins in her head hurt, she didn't want to be there, she wanted to go home (not that i blame her) she opened a package from the Peterson family and that made her smile a bit, then the child life specialist came in and talked to her. Once she brought the Wii in she was all smiles and having fun, she was so excited to show it to Rex. I almost went and got him early from his last day of school. Those two have a special friendship, they are definitely kindred spirits. Then Lady came in, she loved to sit and pet her. Then she went in to surgery, at about noon. Surgery took about 3 1/2 hours Emma did well in surgery. The doctor was happy to see how much pressure was taken off her brainstem when they decompressed her Chiari. This is a good sign that the fluid syrinx in her spinal column will drain by it's self. He wasn't as happy with her skull, he had a hard time anchoring the screws. He described her skull bone like egg shells in some places. They had originally planned on anchoring it to her c-1 vertebra, but it was very thin, so they had to fuse her c-2 & c-3. So those are the high and lows of surgery. She had a good night and day today. Mostly out of it and sleeping, it should be about the same tomorrow. Our biggest risk right now is a spinal fluid leak. The best part is we snagged the Wii machine for the weekend!

Sporting HER new trend of summer