They removed the cartilage from behind her ears and so she has to wear a bandage for the next week then they give her a soft headband to keep them protected.
Sunday, March 27, 2011
Tubes Removed!
Friday the tubes came out (it only took us 3 years to get it done!) the doctor said they never would have come out on their own. The hole left in her ear drum she said was quit small and has a really good chance of healing and closing up completely. So her hearing should be completely restored.
Saturday, March 19, 2011
Celebrities!
Thursday, March 17, 2011
Endo & ENT
It has been a busy week with doctors. Mon. we say the Endocrinologist and the good new is her blood work is normal, and so is her MRI of her pituitary gland. The bad news is that makes it harder to get growth hormone (GH). It's starting to look more unlikely that we are able to try GH. The doctor is going to take it to a review board. If he is willing to prescribe the GH. It is almost a for sure our insurance will not cover it. Now the drug companies if they have a prescription from the doc will usually do a clinical trial for 6 months which is all we need to see if the medication makes a difference. I go and see the Endo again in a couple weeks and i'll know more on that.
Today we went to the ENT. Emma has had her tubes in her ears for 6 years which is 3 years to long. Long story why we haven't gotten them out yet. The good news is we are scheduled for SURGERY next Friday. Because they have been in way to long they will remove the tubes then take some cartilage from behind her ears and patch the hole in her eardrum in hopes that the eardrum heals without a permanent hole. She will be aloud back to school on Mon. if she wants, so this is not the big surgery. I did promise her a trip to Build A Bear for a new outfit for Snuggles. This made her o.k. with the fact she had to have surgery!
Wednesday, March 9, 2011
We all need a friend.
Last year this time Emma did a program at her school called Marathon. They would run a mile and a half 2x a week until they had reached 26 miles. Last year Emma struggled to keep up was last to finish and didn't say it hurt to run just that she couldn't. I found this strange and talked to her pediatrician about it. She referred me to a neurologist. who did an MRI, who diagnosed her with her conditions. When it came time to do it again this year she had little desire to walk it when the other kids were running it. She wasn't going to do it this year until she did P.E. with a girl named Kaylynn, who is blind. Then we arranged for Emma to lead Kaylynn, and Emma was excited to have a friend to walk with. So together they have accomplished and received a medal at the UCLA stadium.
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